News
March 27, 2019
Understanding Hemophilia For All Ages
Child reading Hemophilia and me

Jumo Health and the National Hemophilia Foundation seek to increase health literacy with the release of four evidence-based comic books for those managing hemophilia

 

NEW YORK, NY (March 2019) – Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate  information for children, teenagers, and families managing hemophilia, a bleeding disorder.

The books, created in collaboration with the National Hemophilia Foundation (NHF), break down a variety of topics, including  what clotting factors are and how to successfully manage the condition on a daily basis.  As with all Jumo Health titles, the books are evidence-based, peer reviewed by leading physician specialists, and based on  real patient stories to ensure authenticity.

“At NHF we recognize the need for people with bleeding disorders to be educated about their condition in age-appropriate ways. These books demystify the science behind bleeding disorders while acknowledging the emotional component of living with a chronic illness,” stated Kate Nammacher, Senior Director of Education at the National Hemophilia Foundation.

Each of the four comic books targets a different age cohort including a toddler, adolescent, teenager, and adult caregivers as they navigate through the diagnosis of, and subsequently living  with, hemophilia. The books are written in a complementary style appropriate to each target age group, making this collection of books a comprehensive resource for those affected by hemophilia.

“For decades we’ve watched as statistics surrounding reading comprehension, health literacy, and medication compliance remain fundamentally unchanged,” shared Kevin Aniskovich, President and Chief Executive Officer of Jumo Health. “With only 20% of patients receiving information when initially diagnosed, it’s no surprise that many patients don’t have the tools to succeed. We are delighted to work with NHF to reverse this trend and to ensure these resources get into the hands of patients, caregivers, and health care professionals.”

The importance of having age-appropriate resources such as these  is echoed by Jason, whose family and son Ben are featured in Understanding Hemophilia for Families. “Sharing through an easy read -like a comic book-  is perfect; it ties a real story into what would otherwise be a complicated disorder to understand. We are honored to have been asked to share our story and Ben’s walk with hemophilia.”

Families can email NHF’s HANDI directly for individual requests. The books are also available for purchase online at the Jumo Health store.

 

About The National Hemophilia Foundation

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention.    

Visit the National Hemophilia Foundation.

 

Jumo Health develops age-appropriate, culturally relevant, and relatable educational resources for patients and caregivers. We have experience serving diverse populations, covering more than 160 health topics across 80+ countries in 120+ languages. Our various digital, video, and print offerings use highly visual elements and research-backed health literacy strategies to ensure that everyone can understand and act upon complex medical information. We do this through familiar mediums – from comic books and animation, to virtual reality experiences and authentic documentary-style patient stories – all customized based on audience. Jumo Health collaborates globally with more than 180 advocacy groups and community organizations to promote access and to ensure unique patient experiences are accurately represented.

Media contact

For more information about Jumo Health or this article, contact Dani Himelright by calling +1 (614) 284-6804 or emailing dani@jumohealth.com.

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