Dropout. Patient fear and anxiety around participation proved difficult for recruitment and led to trial drop out particularly with the teen population.
Relatable Resources. We designed a program to honor each age cohort in an authentic, familiar voice. Knowing their comfort with digital media, a study website was created to ensure participants could learn on their own terms at their own time.
Welcome Guide, Understanding the Study, Understanding Sickle Cell Disease, Activity Books, Microsite with digital comics, Certificates of Completion, Thank You Card, HCP Referral Fact Sheet, Welcome Folder, and Superhero Capes